robbie
my daughter is 6 years old and has holt-oram. we have never let that slow us down. she is a beautiful child that means the world to me. her holt-oram is not severe, she has tri-flagular thumbs (an extra joint) and no wrist bones, but this is something that she has learned to deal with, and she deals with it very well. i am very interested in talking to others with children that have holt-oram. e-mail and we can share experiences.