sbible
Message 1 of 1
I've been diagnosed with ptc only since march. Spinal taps show very little spinal fluid. The headaches are unbearable!!! I've had my glasses changed too. I have polycystic ovarian syndrome so weight is an issue as well as hormonal imbalance. I've lost 28 lbs in 3 months just because I can't eat due to the pain and meds. I am taking a bucket load of meds. My neurologist is great but I think she is at her wits end....i don't fit into any "box" of categories. I now have syncope episodes and facial numbness. I just wanted to know if there was any one else out there!!!!!