Sylvia
Message 1 of 1
Hi, I have rsd for about 21 months, and after having nerve blocks and on strong pain medications, which doesn't help much or at all, now my doctors are considering spinal cord stimulator (SCS), I am scared of the aftermath of side effects and most of all paralysis, I don't know what to do, I cannot stand the pain and I am living a nightmare with four small children ages 4-10 watching their mother cry like a baby and my four year old son even knows what rsd is, my six year old daughter wants to be a rsd doctor when she grows up so she can help me. Their wonderful kids and its not fair that they too have alot of pain. I feel like i am the blame of everything going wrong. My deposition is coming up soon and I do not think I can even handle that. Sorry for this long list of complaints, I just needed to get it out. Please if anyone knows about the SCS or they have it implanted, let me know what its like, I know everone is different, I do not have atrophy or dystrophy, just have alot of pain and weakness, I walk with a cane, and the burning kills me, especailly in the summer. I would appreciate anyone's reponse. Thank You. Sylvia