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Lymphangioma - - Please help!!!

Beth

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I was recently diagnosed with Intraabdominal Lyphangioma via a laperoscopy. Unfortunately, even with all our technology, I haven't been able to find much information about it. Even the doctor's I have talked to say that it is extremely rare and usually occurs in children not adults and is usually located in the head, neck and throat area. Of course, I don't fit into either of these categories - - I am 37 years old and this seems to be growing in my abdomen. If anyone has any information, please email me.
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