SARAH KING
Message 1 of 1
IS THERE ANYONE OUT THERE WHO CAN TELL ME ANYTHING ABOUT THIS SYNDROME? I WAS DIAGNOSED IN JAN. 2001 AND HAVE BEEN ON CYTOXAN AND PREDNISONE EVER SINCE. I AM STILL WEAK AND UNABLE TO GO BACK TO WORK. MY QUESTION IS HOW LONG DOES THE WEAKNESS LAST AND IS IT DUE TO THE MEDICATION OR THE CONDITION? MY DR. HAS NOT GIVEN ME ANY DEFINITE ANSWERS. SO LITTLE IS KNOWN ABOUT THE DISEASE AND MAYBE THAT IS WHY. I WOULD REALLY APPRECIATE HEARING FROM SOMEONE WHO HAS BEEN DIAGNOSED. MAYBE I CAN LEARN FROM THEM.