Shannon
Message 1 of 1
Hi, My sisters daughter Liz was born with this problem and she is now 6 and is doing well. We just heard some news about a little girl that just died at 5 years old and now my sister is pretty upset. I was trying to find some links that had good prognosis news. I would love to send her something to cheer her up and give her hope. If anyone knows of any please email me Thanks.