cheryl
Message 1 of 1
I stumbled across this group. Have adopted a baby girl w/ fx. Her biological mother had it, as did her family, so baby was assumed to have it too. She was tested at birth and is a carrier and is affected. We're having a really tough time finding other parents w/ GIRLS who have this. I was happy to find this site, yet of the 9 messages here, most are parents of sons. My husband and I are connected w/ a resource/support group in AZ (our state) but, there too, everyone has boys. We'd like to know what to expect -and all we get is "she's a girl, it depends". Not much help, I'm afraid. Is anyone out there that might relate!? We're open to any and all support. Thanks!