Tegan
Dear Nancy, My prayers are with you. First thing you need to do is find a good pediatric pulmonologist. If you've done that, great. This doctor should be able to address your concerns and give you specific guidelines to help your child. Who diagnosed your daughter and how was it determined? Most children I know with CF were diagnosed as infants or toddlers. There are some wonderful organizations for parents of CF children. My personal advice is to become an expert on your child and her needs. Don't stop asking questions and if you feel like something's wrong push on, you are your daughters only advocate. Good luck and God Bless Mother of a special medical needs child