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ehlers-danlos syndrome

David

Message 4 of 6 Previous Next



After being in the hospital for 2 months 1/2 of which I was asleep for the entire month.I ruptured my aorta and my family was told I had 15-20% chance to live. I made it,thank God. My DR. told me I have type IV and has put me on LABETALOL,CATAPRESS& vitamin C. The out look is grim from what he has told me and from what I have read. I am 31 years old and have been floored by all of this information. Im trying to find the latest info on this syndrome,do you know were I can start?

 
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