Dan Smith
Message 1 of 1
My daughter Ashley was diagnosed with Behcets and Cyclic neutropenia (neutrophil cells fluctuate). She had ulcers in her mouth and throat. GCFS made the ulcers worse. Does anyone with Behcets have cyclic neutropenia also or is this impossible? Ashley used to spend three weeks out of five in the hospital until a Dr.Guedes took over and tried one of the hemoglobins for treatment on a monthly basis. She has not been hospitalized since for ulcers, but the treatment is painful and lasts three days. Once the treatment is over she's good for another four weeks. What treatments are you taking or experimenting with?