michele
Message 1 of 1
I WAS DIAGNOSED WITH LUPUS ALMOST 10 YEARS AGO. I WAS 20 THEN GOING ON 21 BUT FEELING LIKE A 90 YEAR OLD PERSON COULD NOT GET DRESSED OR SHOWER OR POUR A GLASS OF MILK CUZ TH GALLON WAS TO HEAVY FOR ME. THANKFULLY I LIVED WITH MY PARENTS AND THEY DID EVERYTHING FOR ME. I TRIED TO WORK AS MUCH AS I COULD BUT WORK WAS HARD & VERY UNDERSTANDING AND ALLOWED ME TO WORK WHENEVER I COULD (ALMOST NEVER). I WAS IN THIS SHAPE FOR ALMOST 2 YEARS THEN IT WENT INTO REMISSION, ABOUT 4 YEARS LATER IT WAS BACK BUT THIS TIME ON MY SKIN INSTEAD OF IN MY JOINTS I HAVE HAD THE SKIN RASH SINCE THEN BUT THAT IS EASY TO DEAL WITH. I AM 30 NOW AND JUST FOUND OUT THAT I HAVE A BLOOD CLOT IN MY LEFT LEG FROM MY KNEE TO MY ANKLE. IT'S CALLED A DEEP VEIN THROBOSIS DVT FOR SHORT WHICH IS CAUSED FROM MY LUPUS IN WHICH ONLY 25% OF PEOPLE WITH LUPUS GET THE CLOTS. I WAS ALSO THE 1% TO GET THE LUPUS FROM BIRTHCONTROL PILLS AKA DRUG INDUCED LUPUS. MY HUSBAND AND I HAVE BEEN TRYING TO GET PREGNANT FOR SOMETIME AND NOW THAT IS ON HOLD TILL I CAN GET OFF MY BLOOD THINNER OR I MAY JUST FORGET TRYING TO GET PREGNANT ALL TOGETHER. WE HAVE MISCARRIED ONCE DUE TO MY DIABETES AND HAVE NOT BEEN ABLE TO GET PREGNANT AGAIN SINCE. I AM VERY SCARED BECAUSE I DO NOT KNOW WHAT MY FUTURE HOLDS FOR ME. THEY SAY GOD NEVER GIVES YOU MORE THAN YOU CAN HANDLE, COULD THIS BE TRUE? I'M STARTING TO FEEL THAT IT IS THE OPPOSITE!!!