Rose
Message 1 of 1
I've had scleroderma for 3.5 years, and have never met or spoken with anyone who has it. Truthfully, I can't find anyone! I feel because i have an 'orphan' illness, I don't get adequate care. I read on the net about patients who have biopsies and MRI's, etc., to see EXACTLY the extent of their illnesses...as for myself, all I've EVER had is a blood test and a couple of 10 minute exams. This was from a rheumatologist...I really don't need a 'specialist' to do THAT... So, please...if anyone out there knows what is the proper method of diagnosis, would you let me know? thanks, Rose