Ayshea Hutchison
Hi there! We're also in the uk, I have 2 daughters (6 & 3) the eldest was diagnosed with waardenburg syndrome at a year old, while she was undergoing investigation for a growth/weight problem. She has never had trouble with her hearing until recently, where 2 separated tests showed she had reduced hearing in, first one ear then both. The tests we had last week concluded that she was fine! but could develop hearing loss at any time of her life, I thought that WS children were born without hearing not developed it? It would be nice to hear from you. Regards Ayshea x