AlGrande2001
Message 1 of 1
Dear All, I have been reading your messages posted here and I offer my sympathies. I know it can be difficult and frightening to deal with Long QT. I am associated with the Gene Trust and DNA.com, which a website with information and resources about Long QT Syndrome and other genetic conditions. Please also be aware that the goal of the Gene Trust is to establish a huge database of information about people physical characteristics, health histories, responses to treatments, etc. Based on the genetic knowledge this will give us, we can drastically speed up the rate of medical advances and perhaps we will soon find a cure. Please feel free to visit the site at www.DNA.com - I hope that people will find it helpful. Take Care, AlGrande2001