carla
My niece was diagnosed with this disease and we can not find out any info on this, does anyone know what it is? she is very sick and has been in the hospital for a year now and they have asked family members if anyone would get checked to see if any of us match for a kidney transplant however now they are saying thre is more wrong and we don't understand what all is involved. We have been told a transplant may not be done due to the fact it may be to late. It took the doctors a very long time to find this disease. Please send any info you may have Thank You