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Pulmonary Fibrosis/ Lung Transplant

Jan

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My husband too, is diagnosed with end stage pulmonary fibrosis. He is 46. I am in shock. All surgeon said was to try to get him on a lung transplant list. We are making an appt. for Columbia Presbyterian this week. He too has raynauds, but CREST was ruled out. Know how tired you are. I am a woman of faith, and thank God that helps, but so frightened just the same. talking to someone else who is living with this helps. looking for resources too. God Bless,

 


   
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