Rena
If I were you , I would seek the very best there is, and that would be:Dr. Steven Graff Radford at Cedars Sinai Medical Center or Dr. Seymour at Diamond Headache Clinic. Also, you could call a toll free # for the Nat'l Headache Foundation. Their # is 1- 888-643-5552. They could put you on the right track with Dr's. who specialize in your kind of headache pain. Good luck. By the way, I got all this info from Larry King Live about a year ago.