Lupus,fibro,snojrens and anything else......
Dacy
Message 1 of 1
I was diagnosed with lupus 3 years ago. I think I had it my teens (15-16) In 1982 I almost died from toxceima (which a doctor told me that was probally my first real bout with lupus. They put me on placquinal and predisone (which I found out the predisone causes alot more damage to internal organs than people know..) My plattlets were about 30,000 count and normal should be 150-200,000 count I brusied very easily couldn't sleep could hardly move so I set out on a search of my own It really scared me when I was in arobics and could not get off the floor. I spoke with my doctor and he told me no strenous exercise. So I finally convinced myself I wasn't going to die right away. I have tried a few things that seem to help only introducing them one at a time and maybe not taking it for a while but for blood (msm) seemed to build plattlets and helped with aching so that I could at least get out of bed and move. Massage therapy also helped especially with sinus problems and of course aches and it pushes some inpurities through your body. I also take glucosminesulphate It helps with moving (and believe me I need to move!) I take Calcium with mag and zinc. siberian ginseng for mood and a herbal tea to clense once in a while. I figure since I am a guenia pig I will try my own stuff I am prone to every living thing that walks across the counter and have been steadily going down hill for the past 15 years (finally after my mom was convinced I was crazy) and usually I got told the same thing from doctors I am feeling better and sometimes I just stay around home and npot do much. But I am doing better than I was three years ago. I am 41 now and have school kids and they are something to keep up with but all the doctors in the world can't possibly have an answer to something I live with every day God Bless the one I have now because he is a little scientific and alittle natural unless there is no other way. Somedays are good some ok and some I just don't feel like getting up. I also went to the health food store and asked about swelling glands and ears etc. due to snojrens and they gave me some Raw Gland believe it or not it has helped too. thanks for listening dac