Jen Opperman
Dear Leigh Anne, I also have exactly the same problem. Check out irondisorders.com, they have a great website, and respond to people like us with ideas! Have you tried simply using an 18-gauge needle with the vaccuum bag? I hope you and I both don't have to go the route of having a Port-catheter. That seems so extreme. Incidentally, how old are you, and what are your blood values? I'm just 44, but youthful, and was so surprised to learn I have this. On top of that, I developed painful tendinitis in my shoulder and have hip inflammation. My guess is that it's because of too much iron. Write back, I'm hoping you will be able to avoid the port. I'm commiserating very MUCH with you! Best wishes, Jen