LUCY
HI CHRISTY, I WOULD KEEP A VERY CLOSE WATCH ON YOUR DAUGHTER'S VISION. I RECENTLY STARTED LOOKING AT MY OLD GRADE SCHOOL REPORT CARDS AND NOTICED THAT IN THE FIRST GRADE IT WAS NOTED BY THE SCHOOL NURSE THAT THERE WAS AN APARENT DEFECT IN THE LEFT EYE. NOTHING WAS EVER FOLLOWED UP ON THIS AND AT 18 THE LEFT RETINA DETACHED AND THE RIGHT ONE WAS TEARING. DON'T LET DOCTORS TELL YOU THINGS ARE FINE WHEN YOU KNOW OTHERWISE. THEY USUALLY AREN'T FAMILIAR WITH RARE SYNDROMES AND IF YOU ARE THE EXCEPTION TO THERE EXPERIENCES THEY WILL NOT BE AGRESSIVE IN THEIR APPROACH. IT COST ME MY SIGHT IN ONE EYE AND ALMOST BOTH. ALSO I REMEMBER AS A CHILD NOT BEING ABLE TO RUN LIKE THE OTHER KIDS. I TIRED SO EASILY AND MY HEART RACED AFTER MINOR EXERTION. THE GYM TEACHERS THOUGHT I WAS FAKING ANE FORCED ME TO RUN LAPS UNTIL I COLLAPSED. I DON'T WANT ANOTHER CHILD TO GO THROUGH WHAT I DID. SINCERELY, LUCY