LUCY
I WAS DIAGNOSED WITH STICKLER SYNDROME A FEW YEARS AGO. I AM 44 NOW AND FOR MANY YEARS DEALT WITH WEIRD MEDICAL PROBLEMS NOBODY COULD PUT A NAME ON. DETACHED RETINAS AT AGE 18, RUPTURED DISC AT 21, MITRAL VALVE PROBLEMS TO NAME A FEW. WOULD LIKE TO CHAT WITH ANYONE THAT HAS THIS SYNDROME. SO FAR MY CHILDREN WHO ARE IN THEIR TWENTIES DO NOT HAVE ANY EYE PROBLEMS BUT MY SON HAD ULCERRATIVE COLITIS AND RECENTLY HAD HIS LARGE INTESTINE REMOVED. DON'T KNOW IF THERE IS ANY CONNECTION OR NOT. LUCY