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Tuberous Sclerosis

bridget stull

Message 4 of 4 Previous



I know you posted this a long time ago, i just hope you still check the board. My daughter is 8 weeks old and had a tumor removed from her heart at 3 days old. she has ts. she has 3 tumors in her brain and several cyst in both of her kidneys. This is all hard to deal w/ and like you Im looking for people to talk to. Please email me if you can.

 


   
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