Louise
My son has had nystagmus since birth. At an early age, he found his null point (He gazes out of the left side of his face so his head turns to the right and his chin drops slightly). His nystagmus has in no way hindered his ability to socialize and develop normally. He initially had a hard time seeing us at a distance but the doctor tells us he is far sighted. At 2, he began turning his eyes inward and essentially looked out of one eye. He no longer tilted and turned his head. The doctor said he did this because it stabilized his eyes, which it did, however, they corrected the crossing through surgery at age 3 and now he's back to the old head rotation and tilt. Now they want to operate AGAIN on some of the same muscles when he turns 4 to correct his turn and tilt. I have mixed feelings about this. The surgery is considered minor and done on an outpatient basis. His first operation went well but he reacted to the stitching material and his eyelids became quite swollen. Is there anyone out there who has been faced with a similar dilemna who could share some insight? Your help would be greatly appreciated. Louise