Lisa Eberhart
Message 1 of 1
I've never been diagnosed with narcolepsy but after reading the definition, I definitly know I have it. I fit the definition to a tee!!! It's kinda a relief to know there is actually a name to what I've suffered with for years and that other people actually experience it also. This condition has effected my life in so many negative ways. I've had sleep problems as far back as I can remember. I used to fall asleep in class. Once I got home, most of the time I didn't go out to play with all the other kids. Instead I'd take a nap. When I wasn't napping I was just to tired to play. I had absolutely no energy. I'm 30 years old now, and I don't know that the condition has necessarily worsened. I just think it effects me more now. I have a four and seven year old. I'll have all intentions in the world to take them somewhere or do something with them but when it comes down to it, 75% of the time I don't have the energy. I don't clean my house the way I should. I'd rather take a nap. Sometimes I don't want to take a nap, I just feel like I have to. Sometimes I even sleep on breaks at work, even the 10 minute ones. I know it's not that I'm lazy but try explaining that to someone who just don't understand your sleep disorder!! My boyfriend of 10 years tries to understand but the response I usually get after discussing it with him is "Maybe if you get out and do more it will give you energy and you won't feel tired all the time. The part he doesn't understand is I would love to get out and enjoy life with him and my children. Nothing would make me happier. I just can't get the umph to do it. I'm not saying I NEVER do anything or go anywhere, but usually I'd rather stay home and take a nap, even if only for 15 minutes (kinda like a power nap) My point is I feel like I have no control. I feel like a bad housewife and mother. I get depressed because I know the things I should be doing and have all good intentions but.... Also since I'm tired all the time, I get irritable and grumpy easy. Then feel bad about that also. I could go on (like about muscle weakness at times, waking up a lot of different times every night, etc.) but I know this message is getting lengthly. Does anyone have any suggestions that would make my everyday life a little easier and better for everyone around me??? (Techniques, medicines, anything!!!) I just want to feel normal and do normal activities without being tired all the time. I'm open to any suggestions!!! They would be greatly appreciated. Thanks for listening. Lisa