Phyllis
My 14 year old boy who was first misdiagnosed as having a sinus infection and ear infection....which turned out to be spinal meningitis seems to be doing much better. He missed the first month and one-half of his first year in high school. We really had to work hard for him to stay up with the other students and still battle it everyday, but he is determined. We suffer short term memory loss still and he also seems to be real weak in the upper torso area, but we are working to build his strenghth up. My son did quit breathing two times while in the hospital and that is an experience I never want to see or go through again. The only "major" thing that concerns me is when he quit breathing for some reason which I am sure it was the swelling of the brain, his cerebellum dropped into the opening of his spinal cord. It has not returned to normal and the doctors do not know if it ever will and if it doesn't what may happen down the road. They tell me this is the part of the brain for your motor skills and that he may be walking one day and fall and might not can get up. They tell me that if this does happen that brain surgery will have to be done to correct this. We don't know whether to go ahead and correct the problem or wait and see what happens. They say this is a very delicate and dangerous surgery. Has anyone ever had this happen to them or know of someone this may have happened to when they developed meningitis?