Ida
Mary- I have had PMR for 1 1/2 years. To me the worst part is the lack of energy. I find that going to bed early, at 8 p.m. helps alot. Also, pacing my work. I started out on 40 mg. of Prednisone (My sedrate was 100) Now I am on 7 mg daily, upped from 6 mg because the sedrate went back up again. You will begin to do more, but slowly. Try resting frequently. (I know, that's all you can do) The disease is supposed to run it's course in two to four years. I think the doctors don't really know a whole lot about it and since the disease in non-life threatening, I can't see research money for it. Hope you will feel better soon. Ida