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Klippel Feil Syndrome

Mrs Rossouw

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I have a 2 and a half month old baby. At birth she was diagnosed with Pierre Robin and Klippel Feil Syndromes. We have mostly been able to address most of the problems associated with these syndromes. As far as the Klippel Feil syndrome is concerned, however, I am uncertain about what I should be looking out for or have medically checked i.e. neck vertebrae, osteoporosis etc. Her one kidney is functioning perfectly and doctors say she will propably outgrow her heart problem. Is there a cure, please help!
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